This article
was written in mid-1991 (and now updated in 2010) after accepting an invitation
to participate in (and run a panel) at the 1991
A
Look Forward... and Up
November 15, 16 and 17th, the
Philadelphia Science Fiction Convention, or Philcon, comes to the Adam's
I am fortunate to be among them, and
even more fortunate to be in the former category. But a few short decades ago, I would have
been confined to a nursing home, or at the very least, dependent on a full-time
attendant to help me through my daily living routines. I have Multiple Sclerosis and I am paralyzed
from the waist down, partially incontinent, strongly spastic and I fatigue easily. But, some creative architecture and existing
adaptive technology in the forms of medication, adhesive external catheters,
powered and manual wheelchairs and an adapted van have given me
independence. Because of these aids, I
am able to live alone and take care of myself (now I need attendant care help
for some things) while handling a full-time job (alas, after 27 years in he
same job [23 in a wheelchair] I was forced out on Social Security Disability as
my accessible employer closed and I couldn’t find another job). I also have a
freelance writing career -- the latter of which is something I never would have
considered before the age of computers.
In addition, I handled (for five years) a volunteer post as a steering
committee member of the
And now, as I did in
For the blind, talking and Braille-printing
computers allow participation in the information revolution. TTD's, or teletype devices, allow the deaf to
communicate and now, improved voice recognition systems such as Dragon Dictate,
Naturally Speaking allow easy writing.
And as for the more extensively motor-impaired, computer technology now
allows even quadriplegics to be productive through mouth and chin-controlled
wheelchairs and computers. And a head
mounted controller and a puff stick allows a nearly totally paralyzed person to
select a letter or icon from a screen to write and, with the addition of a
speech synthesizer, to speak. And for
individuals who are unable to move more than their eyes, there is even a system
that allows individuals to write and speak by selecting letters or icons with a
simple concentrated look at them.
As it is clear to see, the productivity
boundaries between disabled and able-bodied narrow every day thanks to
technology. The most overpowering
barrier facing the disabled now is one of attitude. We face much the same problem as
minorities. People look at us and they don't
quite know what to say. We look
different. They don't understand us and
they are afraid to say the wrong thing.
So instead, it's easier to ignore us and try not to have us around. Unfortunately, that attitude just makes it
worse because we are prevented access and participation in much of what goes on
around us. Which is a shame, because all
we want is a chance to participate in life and to be treated the same as
everyone else: As people.
One day it won't matter. Race, gender, disability: they will be irrelevant and people will be
judged by "who" they are. But,
for the moment, we still shut out those who are different or don't fit our
standard images.
On that note, though, it is worth
mentioning that even today, such a barrier free world already exists, albeit an
electronic one. And a fascinating one!
In the 80’s I was online with
electronic bulletin board service called BIX (Byte Magazine Information
Exchange), and on there we had a specialized adaptive technology conference and
a closed "disabled and family only" conference. Since logging on in these areas, one of my
occasional little games is to try to figure out who was disabled and who was
not. And now, with Yahoo and other Mail servers, anyone can be connected,
interactive, and informed.
Just like on any bulletin board services
(BBS), unless someone chooses to tell you, there is no way of knowing whether
they are disabled or not. Whether you
type a letter at a time with one of the above adaptive systems, or type 120
words a minute, it doesn't matter. Online
there is a living, interactive form of communication and information resource
that doesn’t have to be real-time.
Instead, you post your message or response when you are finished typing
it -- whether that takes a minute, or ten, to do so.
Race, disability, gender -- unless you
choose to reveal it, no one will ever know.
What counts is what you say and do.
If only the "real" world were
as blind.
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