July
2, 2008This is part of the Brejcha Personal and Disability Resource Site at http://www.netreach.net/~abrejcha, and after reading this page you can click here to go back to Organizations and Resources. But for now, Welcome to my:
== MOBILITY IMPAIRMENTS & NEUROLOGICAL CONDITIONS
July
2, 2008
NOTE:
as a lot of the disABILITIES below have manual wheelchair users, I am including
Custom Grip Gloves at
http://www.custom-grip.com/ which is growing in New Zealand and I am
now ready to accept orders from Australia, Asia, North America, UK and Europe
TO START National Institute of Neurological Disorders and Stroke (NINDS) at http://www.ninds.nih.gov is the Federal Government's leading supporter of biomedical research on nervous system disorders, including MS.
OTHER SITES/CONDITIONS:
Adrenoleukodystrophy (ALD)
A.L.D. Foundation at http://www.aldfoundation.org is "...a non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease..."
NINDS Adrenoleukodystrophy Information Page is rich with information on this condition.
Wikipedia ALD page at http://www.wikipedia.org/wiki/adrenoleukodystrophy is another great resource.
Amputee:
http://www.amputee-center.com offers a range of resources, links and information.
Amyotrophic Lateral Sclerosis (ALS or Lou Gherig's):
A.L.S. Association at http://www.alsa.org"...The ALS Association is the only national not-for-profit health organization dedicated solely to lead the fight against ALS...."
Another great site is the Beat ALS page of Doug's Home Page at http://homepage.mac.com/jakesan/DHP/page8/page8.html .
The PALS Webring at http://www.users.bigpond.com/paulfran/JoinPALS.htm has a bunch of info and links on this condition.
Preoject ALS at http://www.projectals.org is a key player in working to get stem cell research going for ALS and other conditions (as shown in the recent CBS television movie "Jenifer" about the founding of the organization)
Ataxia:
The National Ataxia Foundation at http://www.ataxia.org is a nonprofit organization established in 1957 with the primary mission of encouraging and supporting research into Hereditary Ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination
Brain Injury:
Brain and Spinal Cord.org at
http://www.brainandspinalcord.org offers extensive information and
resources on brain and spinal cord injuries
Brain Injury Association of America at http://www.biausa.org is "...dedicated to creating a better future through brain injury prevention, research, education, and advocacy..."
BrainInjury.com at http://www.braininjury.com "...is a medical, legal, and informational resource for persons dealing with traumatic brain injury..."
Life With TBI "A Resource for Survivors" at http://www.tbilife.com is a survivor's personal story and resources shared here.
Traumatic Brain Injury Recovery Center at http://www.tbirecoverycenter.org "...is dedicated to helping people learn about the major milestones on the road to recovery and providing assistance with resources that will speed the recovery along..."
Carpal Tunnel Syndrome
Carpal Tunnel Syndrome Guide at http://www.carpal-tunnel-syndrome-guide.info is "...an extensive resource to find information on Carpal tunnel syndrome and its treatment methods. Discover the causes, symptoms, exercises, carpal tunnel surgery, wrist braces, etc. Learn some simple carpal tunnel exercises to prevent CTS..."
Cerebral Palsy:
About Cerebral Palsy at http://www.about-cerebral-pa;lsy.org "Find out about cerebral palsy disease, types of cerebral palsy, and ask doctor if you are eligible for lifetime benefits. Free evaluation."
Alfred I. Dupont Institute Cerebral Palsy Program at http://gait.aidi.udel.edu/res695/homepage/pd_ortho/clinics/c_palsy/cpweb.htm offers a wide range of information.
Cerebral Palsy Directory at http://www.cerbralpalsydirectory.org has a wealth of resources of all sorts
Cerebral Palsy: a multi-media tutorial for children and parents at http://hsc.virginia.edu/cmc/tutorials/cp/cp.htm is a great source of information.
CerebralPalsyFYI.com at http://www.cerebralpalsyfyi.com is a commercially-sponsored site, but has a lot of useful information.
Euromed Rehabilitation Center at http://www.euromed.pl is the English language site for a unique Polish rehab treating a wide variety of international clients and offering "...treatment of patients affected by Cerebral Palsy and other neuromuscular disorders. It offers nonsurgical treatment for locomotor development in children and adults..."
Living with Cerebral Palsy Support Group at http://www.livingwithcerebralpalsy.com is a resource-rich site from a web-weaver with C.P. and Neuromuscular Scoliosis. A definite "must" for anyone looking for support and resources.
The United Cerebral Palsy Association home page at http://www.ucpa.org offers links and resources.
Cerebral Palsy Source at http://www.cerebralpalsysource.com provides extensive resources
Dystonia:
The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. at http://www.dystonia-parkinsons.org is an excellent resource from an organization "...established in 1995 to support ongoing research towards discovering the cause and cure for Dystonia."
Epilepsy:
Epilepsy Advocate at http://www.epilepsyadvocate.com "...are a community of people and their families living with all types of epilepsy. Get to know the inspirational stories of Epilepsy Advocates, people like you who are finding ways to take control of their epilepsy and their potential. Come back often for more information, insight, and support. And be inspired today—hear the stories our Advocates are sharing. ...":
The home page for the Epilepsy Foundation of America is at http://www.efa.org.
Seizure Alert Dogs at http://www.homestead.com/Tagert/MsJew;.html is a superb site about Epilepsy seizure alert dogs that can free people to live by being able to predict seizures.
And Washington University has a very resource-rich page at http://www.neuro.wustl.edu/epilepsy
Guillain Barre Syndrome:
New Zealand Health Network Guillain Barre Syndrome Page
`
Hereditary Spastic Paraplegia / Familial Spastic Paraparesis:
The HSP/FSP Page at http://www.geocities.com/HotSprings/Spa/2847 is a page providing extensive resources and information for people dealing with these conditions.
Multiple Sclerosis:(on its own page due to size)
Muscular Dystrophy:
The Muscular Dystrophy Association - USA is located at http://www.mdausa.org
And The Muscular Dystrophy Association - Australia at http://www.mda.org.au is the link for the Australian organization.
Another Muscular Dystrophy Foundation is in Indianapolis, Indiana at http://www.al.com/crystalflash/mdfserv1.html
Myesthenia Gravis:
The Living With Myestheia Gravis page athttp://pages.prodigy.com/lifewithmg is a superb site that offers extensive links and information on this condition.
My MG is not a sportscar is a superb, resource-rich site on Myesthenia Gravis.
Neurological Conditions, An Index Site
The Snap, Neurological Conditions page at http://www.snap.com/directory/category/0,16,home-447,00.html offers a lot of good links to assorted conditions.
Paralysis: (see also M.S., Spinal Injury and other conditions leading to paralysis)
The National Rehabilitation Centre for the Paralysed at http://www.nrcp.co.uk uses exercise therapy to rebuild lives shattered by paralysis. The Centre treats people with a variety of conditions from spinal cord injury paraplegia and tetraplegia to MS, stroke, spina bifida and brain damage.
Parkinson's:
The site for The National Parkinson Foundation, Inc. offers information and resources.
Post-Polio:
The Post Polio Health International at http://www.post-polio.org "The new name is meant to project the broadest meaning of "health," encompassing the physical, emotional, social, psychological, and spiritual aspects of individuals' lives." A great reasource.
The Post-Polio Syndrome Central at http://www.skally.net/ppsc is an excellent resource with extensive information as well as links to PPS related E-mail Discussion Lists and Usenet groups.
Reflex Sympathetic Dystrophy Syndrome
Reflex Sympathetic Dystrophy Syndrome Association Of America at http://www.rsds.org (in English and en Espanol) is a resource-rich site and multi-lingual site on this condition.
Reflex Sympathetic Dystrophy Coalition at http://www.rsdcoalition.com is another excellent site with a great links page.
RSD Hope page at http://www.rsdhope.org is a professionally executed personal page with great links and resources.
Reflex Sympathetic Dystrophy ( R.S.D.) Support Group at http://www.ozemail.com.au/~ozrsd/main.htm is an excellent resource (with a real cute animated Dragon GIF :-) )
The Yahoo Reflex Sympathetic Dystrophy page at http://dir.yahoo.com/health/diseases_and_conditions/reflex_sympathetic_dystrophy has a range of links.
Spinal Cord Injury:
The Alan T. Brown Foundation to Cure Paralysis at http://www.ntwks-newington.com/brown/ was formed to raise funds for scientific and medical research toward the cure for spinal cord injuries, and also offers useful links to resources.
Another excellent site is the one for the American Paralysis Association at http://www.apacure.com.
Apparelyzed.com at http://www.apparelyzed.com is primarily a commercial site with clothing with spinal cord injured humour, but I included it because there is also a lot of good information here and a discussion board.
Brain and Spinal Cord.org at
http://www.brainandspinalcord.org offers extensive information and
resources on brain and spinal cord injuries
The site for The National Spinal Cord Injury Association at http://www.spinalcord.org/about/about.html provides a wide range of services and resources for persons with spinal cord injuries.
GIGER MD Therapy at http://www.gigermd.com "...Exceptionally successful Improved mobility for patients thanks to advanced locomotion therapy..."
And the Paralyzed Veterans of America site is located at http://www.pva.org.
Spinal Cord Injury: A Medical, Rehabilitative, and General Approach at http://www.users.sgi.net/~ozzy/handicap.htm also has a lot of great information and resources.
Spinal Cord Injury Information Pages at http://www.sci-info-pages.com "A free resource for those with a spinal cord injury, or other disabling injury or disease of the spine. Provides health information and resources related to spinal cord injuries and contains related links with site descriptions."
Spinal Cord Injury Resource Center at http://www.spinalinjury.net was "created to help people and their family with a spinal cord injury become, and stay informed. We will try and cover everything from finding a rehabilitation center, to getting a job and becoming independent again."
Wheelweb at http://www.wheelweb.com is a superb site with a wide range of resources and features including chat, free e-mail and a bulletin board.
Spinal Muscular Atrophy:
Families of Spinal Muscular Atrophy at http://www.fsma.org is a terrific site with resources.
Family Village SMA site at http://www.familyvillage.wisc.edu/lib_spma.htm is another good resource.
The Spinal Muscular Atrophy page at http://www.wheelabout.com.au/smamd.htm is part of Brian Newton's Wheelabout page at http://optushome.com.au/wheelabout which was formed to "further the ambitions and lifestyles of people with severe physical disabilities through advocacy, advice and assistance". This is a neat site put up by someone who knows well the obstacles facing people with disabilities, and it has lots of great resources.
Yahoo's SMA page has good resources.
Transverse Mxyelitis:
The Transverse Myelitis Association site at http://www.myelitis.org is a superb resource by a not-for-profit self-help organization dedicated to providing mutual support to families affected by Transverse Myelitis.
Trigeminal Neuralgia:
Trigeminal Neuralgia Association (TNA) Homepage at http://neurosurgery.mgh.harvard.edu/tna is a superb university site with loads of information.
Trigeminal Neuralgia - You're Not Alone! at http://www.creps.org/tn is an excellent and resource-rich site.
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