February 1, 2012This is part of the Brejcha Personal and Disability Resource Site at http://www.netreach.net/~abrejcha, and after reading this page you can click here to go back to the main INTERNET DISABILITY RESOURCES page. But for now, Welcome to my:
== MULTIPLE SCLEROSIS
February 1, 2012
As this is my own disability, you'll have to forgive a slightly disproportionate number of links here. And, since I am originally from Sweden:
For Swedish web surfers, check out För dom som som lever med M.S. komm hit
And I will start briefly with 3 M.S./disABILITY books as 2 of my books are disABILITY related, and a third is from a friend with M.S. who just published one.
The first is
(MG, D) Click on the cover on the left for more info and a link to buy
People First! This is is a multi-genre anthology of some of my short
fiction (2/3 previously published and 1/3 original) - much of it science fiction
previously published in Analog Science
Fiction and Fact, including a Nebula Award recommended novella which was
also given an honorable mention in Gardner Dozois' Year's Best Science
Fiction, 7th Annual Collection, (1990, St. Martin's: New York. Each story
has a disABLED main character in exciting and challenging situations . This book
was motivated by my own extensivedisABILITIES and desire to entertain mainstream
readers and inspire readers with disabilities to LIVE! But it's meant to be a
fun read for all, using science fiction, romance, horror, and suspense —
and if it also happens to inform, motivate, and inspire, then so much the
better.
Samples
are available here)
The second is
(D) click on the cover on the left for more info and a link to buy
Laugh or Cry: Finding the Lighter Side of disABILITIES Co-authored with
Hollywood producer Sharon Hulihan who also has M.S., this large print collection
of anecdotes and essays by and for people with disABILITIES is aimed at
entertaining and educating both mainstream and disABLED readers by showing the
strength of humor as a healing and empowering force. For more info on the book
(in addition to the link you get by clicking on the cover picture, go to
book description and
samples)
And also check out Valleys To Mountaintops: Inspirational Health Journeys by Teresa Meinert, available at Amazon.com, iUniverse and Barnes and Noble
And for other useful sites, check out:
All About Multiple Sclerosis has an excellent site with lots of resources http://www.mult-sclerosis.org
Accelerated Cure Project for Multiple Sclerosis (used to be 'The Boston Cure Project') at http://www.acceleratedcure.org/ is a national nonprofit organization dedicated to curing Multiple Sclerosis (MS) by determining the cause of MS.
American Outcomes Management, L.P. (AOM) at http://www.americanoutcomes.com/ "..is a physician owned and operated, leading provider of home infusion services. It specializes in the care of patients with Multiple Sclerosis and other chronic and acute disease conditions...".
Can Do Multiple Sclerosis at http://www.heuga.org/ Formerly the Heuga Center for Multiple Sclerosis. ".Edwards, Colo. • Nov. 2, 2009 – Can Do Multiple Sclerosis is the new name of the nation's leading provider of lifestyle empowerment programs for people with multiple sclerosis (MS) and their support partners, announced Kim Sharkey, CEO, Can Do MS."
The Consortium of Multiple Sclerosis Centers Committees at http://www.mscare.org is another good source of information.
Copaxone at http://www.sharedsolutions.com/
is an easily injectable M.S. treatment I have used since mid-2011 and which
seems to help. As a test, I stopped a month and felt worse till I resumed.
Directory of Multiple Sclerosis Alternatives at http://www.wabspawner.com/users/directoryofmultalt.html is a directory of sites on alternative treatments
The Erase M.S. Site, at http://www.erasems.org also has some good information.
Esperanza Reesearch Foundation at http://www.esperanzapeptide.net "...is a not-for-profit organization whose mission is to improve the "Quality of Life" for patients afflicted with disabling or terminal diseases..." including M.S.
Fire Lady's page at http://firelady40/ms/ms1.html has an excellent collection of M.S. Links.
James S. Huggins' Refrigerator Door is, like it sounds, a fascinating collection of things held on electronically instead of magnetically, but one superb part hold his extensive M.S. Resources
Knowledge Weaver's Multiple Sclerosis page at http://www-medlib.med.utah.edu/kw/ms is more for health professionals than laypersons, but it is a superbly informative reference site about Multiple Sclerosis.
.L.D.N.: An intriguing alternate therapy I have used since 2004. For info, check out: LDN Aware and The LDN Research Trust and I have a reprint of nn article about it the latter published at January 31, 2004 The Messenger Newsletter "Trying something new for M.S.":
MS Central Support at http://www.mscentralsupport.com was formed to "assist in the education and understanding of Multiple Sclerosis. We strive to provide up-to-date and reliable information to those living with MS, their families, as well as to those going through the diagnostic process. MS Central Support encourages advocacy in health and disability matters."
MS Watch at http://www.mswatch.com is a superb new site for people with M.S. and their health care providers. Loaded with resources, tools, messaging, personal stories, medical updates, and much more. It is an invaluable resource for clients and professionals.
MS World athttp://www.msworld.org "...The primary mission of MSWorld, Inc. is to end the isolation that people feel when diagnosed with a chronic illness, specifically multiple sclerosis...."
The Multiple Sclerosis Association of America at http://www.msaa.com "is dedicated to enhancing the quality of life of people coping with multiple sclerosis -- patients, their families, and friends. MSAA offers a varied assortment of patient care services while conducting groundbreaking symptom management research and wide-ranging informational campaigns".
Multiple Sclerosis The Greatest Medical Mistake athttp://www.ms-cure.com/ "...is a book that reveals medically documented information that should be passed on to patients suffering from multiple sclerosis, but it is not, and as a consequence, multiple sclerosis sufferers are left in the dark, when it comes to knowing the actual cause of MS, and how it can be overcome... "
My MS My Way at https://www.mymsmyway.com/ "...Your guide to using technology to help improve the way you live with multiple sclerosis (MS)..."
Multiple Sclerosis Alternatives web site at http://www.webspawner.com/users/multalternatives.html has a great selection of sites..
7/12/2010 Multiple Sclerosis Foundation, Inc. at http://www.msfocus.org offers information on both traditional and alternative treatments, as well as other M.S. resources. It also provides a superb quarterly magazine called MSFocus.
The Multiple Sclerosis Information Gateway at http://www.ms-gateway.com is the front door to a range of M.S. information for different part of the world, in several languages. Also has a lot of useful information.
Multiple Sclerosis International Federation at http://www.msif.org ia a multi-lingual and "comprehensive, international and up to date information resource developed by MS experts worldwide."
The Multiple Sclerosis Resource Centre (MSRC) at http://www.msrc.co.uk/ is a proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice. Our approach is to encourage individuals to make choices that are appropriate to their daily lives, empowering them to maximise their potential. They publish New Pathways magazine
The home page of the National Multiple Sclerosis Society at http://www.nmss.org offers a range of information and links about M.S. and an excellent quarterly magazine Inside M.S.. And for folks in my own neck of the woods, Greater Delaware Valley chapter is online and about to get even better . .
National Institute of Neurological Disorders and Stroke (NINDS) at http://www.ninds.nih.gov is the Federal Government's leading supporter of biomedical research on nervous system disorders, including M.S.
Stu's Views and MS Related News at http://www.msviewsandnews.org/ "Have MS or know somebody with it?" Try a weekly MS related e-newsletter called " Stu's Views and MS Related News.
Text Reminders at http://textreminders.net/ "..can help remind you to take you medication, of doctor's appointments, and more by sending a scheduled text message to your cell phone. .
Tovaxin Click on Tovaxin on the
menu bar for info on this new treatment method
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