This is part of the Brejcha Personal and Disability Resource Site at http://www.netreach.net/~abrejcha, and after reading this page you can Click here for a Menu . But for now, Welcome to my:

INTERNET DISABILITY RESOURCES

== OTHER DISABILITIES AND CONDITIONS ( E-mail me with any corrections or your comments to help others! )

February 23, 2009 with new or corrected condition listings and links (still checking links - some died so I am looking for new)

For links to a number of different disability topics, conditions and associations not listed here, check out:

updated GIF Yahoo Health: Conditions and Diseases at http://health.yahoo.com/conditions/;_ylt=AlhIWMu9ufk3z0a4Ccgh31az5xcB Scroll down to listing

For disability-specific sites select from:

AIDS:

AEGIS (Aids Education Global Information System) at http://www.aegis.com AEGIS is the largest free-access HIV/AIDS knowledge base on the web. Over 700,000 files, fully-indexed, cross-referenced, and keyword searchable

Albinism

NOAH (National Organization for Albinism and Hypopigmentation at http://www.albinism.org "...U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them..."

Allergies (see Asthma and Allergies below)

Ankylosing Spondylitis:

The Spondylitis Association of America at http://www.spondylitis.org serves people affected by Ankylosing Spondylitis and related diseases; to inform people about their condition and its management, to provide networking opportunities for peer support; to promote early diagnosis and effective treatment; and to increase funding for research to find the cause and the cure

Alzheimer's:

The The Alzheimer's Association at http://www.alz.org is the home page for information on Alzheimer's.

The American Health Assistance Foundation at http://www.ahaf.org has an excellent page on Alzheimer's information at http://www.ahaf.org/alzheimers/with resource and research information

HealthLinks has a lot of resources, and on their Directory Resources click on "Diseases A-H " and type in "Alzheimer's" in t'he 'search' box for lots of links.

Anorexia/Bulemia:

The Anorexia & Bulemia Ring at http://www.geocities.com/HotSprings/2994/ is the home page for this ring of sites devoted to the critical issue of eating disorders ruining the lives of too many people. At the very bottom of the page there is a selection of links, including one to "List Sites" that takes you to an index.

Hope for Healing Eating Disorder page at http://www.hopeforhealing.org/ed.html has a lot of good information.

The National Institute of Mental Health's Eating Disorders page at http://www.athealth.com/Add_EatingDisorder.html is a superbmulti-faceted resource page.

Arthritis:

The Arthritis Foundaton at http://www.arthritis.org/ has a range of good resources.

The Arthritis Trust at http://www.arthritistrust.org is an excellent site with a wide range of information and resources.

Asbestos related Cancer - see Mesothelioma below

Asperger's Syndrome

OASIS, (Online Asperger Syndrome Information & Support) at http://www.udel.edu/bkirby/asperger/ is a superb resource supported by the University of Delaware.

Asthma and Allergies:

The Allergy Learning Lab at http://www.allergylearninglab.com is a free site where you can get a personal allergy profile and ask questions of an online doctor.

American Academy of Allergy, Asthma and Immunology at http://wwwaaaai.org is designed for patients as well as health care providers. The site has news reports, physician's referrals, online pamphlets, a kids' area, and regional allergy alerts and information.

Allernet at http://www.allernet.com is a useful site with an excellent feature: a real doctor's answers to your questions.,

The Asthma and Allergy Foundation of America at http://www.aafa.org has good resources for affected children and teens.

The National Pollen Network's Allernet at http://www.allernet.com has FAQs and national allergy forecasts and a national directory of specialists.

Pollen.com at http://www.pollen.com offers 4 day pollen fourcasts for any zip code location

Autism:

The Autism Society of America at http://www.autism-society.org has as its mission "...to promote lifelong access and opportunities for persons within the autism spectrum and their families..."

iautistic.com at http://iautistic.com is a great site in Singapore in English with good resources

The National Autistic Society at http://www.nas.org.uk/ (New Url)"...is the UK's foremosr charity for people with autistic spectrum disorders and their families..."

Brain Injury: see Head Injury below

Cancer:

Online Cancer Guide at http://www.onlinecancerguide.com/ has info on all sorts ofcancer.

As chemotherapy is often common, a good site to visit is:

Chemotherapy.com at http://www.chemotherapy.com with extensive information.

Asbestos-related cancer - see Mesothelioma below

Breast Cancer:

The Breast Cancer Fund at http://www.breastcancerfund.org strives to be sure women with breast cancer get all information needed.

The Breast Cancer Lighthouse at http://commtechlab.msu.edu/sites/bcl is a powerful virtual support group with indepth user-friendly medical information.

Breast Health Access for Women With Disabilities at http://www.bhawd.org provides a good resource.

National Alliance of Breast Cancer Organizations at http://www.nabco.org -- name sort of says it all.

National Women's Health Information Center at http://4women.gov is a good starting point, and at their Women with Disabilities page at http://4women.gov/wwd/index.htm there are a lot of good resources including for breast health.

Other Cancer Sites:

The American Cancer Society at http://www.cancer.org has lots of information on this site.

The Cancer Foundation at http://www.thecancerfoundation.com has information on a variety of cancer issues.

Cancer News on the Net at http://www.cancernews.comalso has lots of useful information.

The National Cancer Institute's CancerNet at http://cancernet.nci.nih.gov "...includes a variety of sources to help meet your cancer information needs".

Gilda's Club Home Page at http://www.gildasclub.org is a meeting place for people with cancer and their families, inspired by the late comic actress. This web site is part of a nationwide network of clubs that provide networking and support.

The University of Pennsylvania has an excellent cancer information on their OncoLink site at http://oncolink.upenn.edu

Cerebral Palsy - see Mobility and Neurological Impairments

Cerebral Palsy and Deafness

Cerebral Palsy and Deafness Organization at http://www.cpado.org has an attractive and useful site and welcomes input.

Chronic Disease:

Living with a Chronic Disease at http://www.xs4all.nl/~nl/english is the English language version of this excellent Dutch site worth the time to explore. (with a link back to the original language version)

Chronic Pain:

I-Stop is the site for The Institute to Stop Pain at http://www.istop.org which is "Dedicated to the understanding and treatment of soft tissue pain," and offers a range of excellent resources.

Cluster Headaches

O.U.C.H. - Organiation for Understanding Cluster Headaches at http://www.ouch-us.org "...provides information and emotional support to cluster headache sufferers throughout the world. ..."

Crohn's:

Crohn's and Colitis Foundation of America at httnp://www.ccfa.org "..is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. It was founded in 1967 by Irwin M. and Suzanne Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, M.D. ..."

National Digestive Diseases Informatin Clearinghouse (NDD IC) at http://digestive.niddk.nih.gov/offers a lot on various digestve issues (enter Crohn's for lots of links)

new GIF Congenital cytomegalovirus (CMV)

new GIF CDC's CMV page at http://www.cdc.gov/cmv/ is a resource-rich page from the government Center for Disease Control agency.

new GIF CMV Foundation at http://www.cmvfoundation.org/ "Brendan B. McGinnis Congenital CMV Foundation is a non-profit established to raise public awareness about congenital CMV and to affect change in the medical community so that physicians will begin to test women for CMV prior to pregnancy..."

new GIF Lisa Saunder's personal and CMV page at http://congenitalcmv.blogspot.com/ is a neat and useful page with great resources.

Diabetes:

American Diabetes Association at http://www.diabetes.org/default.htm offers a solid source of information.

And the Diabetes page of the On-Line Connection! Disability, Medical and Health Resources site has a superb collection of links.

Dialysis needs

Dialysis Finder at http://dialysisfinder.com and Where Dialysis.com at http://www.wheredialysis.com will find dialysis sites anywhere in USA, and at Travel Links at http://dialysisfinder.com/travellinks.cfm there are sites around the world.

Down's Syndrome:

The Family Village Down's Syndrome page at http://www.familyvillage.wisc.edu/lib_down.htm

Dwarfism:

The new web site for The Little People of America is www.LPAOnline.org

Dyslexia:

The Dyslexia Institute at http://www.dyslexia-inst.otg.uk is an excellent English dyslexia site with good resources.

Dyslexia Online at http://www.audiblox2000.com/dyslexia_dyslexic/dyslexia.htm is an "Online Magazine Offering New Perspectives on Dyslexia ..."

Dyslexia TV at http://www.dyslexia.tv Is a resource-rich site for, and often by, people with this frustrating condition. I was happy to be contacted by this site (and it made me search out these others) as I am a paraplegic man with M.S. with a wife with M.S.. We are dependent on attendant care - me to keep working, and my wife for help around the house - and by far! the best attendant we have happens to be dyslexic. A woman my age, who is incredibly caring and capable. She has frustrations to deal with, but has, and does, accomplish so much!

International Dyslexia Association at http://www.interdys.org "...is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. IDA is the oldest learning disabilities organization in the nation -- founded in 1949..."

Fibromyalgia:

Fibromyalgia & Fatigue Centers, Inc. (FFC) at http://www.fibroandfatigue.com "..we specialize in treating the debilitating conditions known as Fibromyalgia, Chronic Fatigue and Immune Dysfunction Syndrome and Unrelenting Fatigue. We offer help through a successfully proven treatment protocol and have treated over 12,000 patients nationwide. ...".

Healthline.com page on Fibromyalgia at http://www.healthline.com/galecontent/fibromyalgia offers a lot of informatiin

Head injury: (note: using the Google search engine, type in "head injury" for a range of sites, but here are some):

Brain Injury.com at http://braininjury.com is "A medical, legal and informational resource for persons dealing with traumatic brain injury."

The Head Injury page on the Kids Health for Parents site offers good resources.

HeadWay at http://www.headway.org.uk also offers good info.

The Perspectives Network at http://www.tbi.org was founded by a survivor of a head injury, demonstrates its commitment to communication and education

Hepatitis C:

Yahoo's Hepatitis C page Has a lot of relevant info. My apologies for not discovering that the superb site I had listed had closed and been taken over by a porn site!

Huntington's Disease

Medline's Huntington's Disease Page is a SUPERB page with numerous links to explore.

Huntington's Disease Society of Ameroica at http://www.hdsa.org is '...committed to promoting and supporting research to find a cure, helping families and communities affected by this disease and educating the public and healthcare professionals about HD..."

Immune and Multiple Chemical Sensitivities:

new GIF Immune Disease.com at http://www.immunedisease.com/ Click on United States or Europe for "...Information and Resources for Primary Immune Deficiency...:"

"Invisible" Disabilities:

Designed Thinking has a lot of resources for psychological disorders

And The Invisible Disability Page (new URL) at http://www.davidmoisan.org/invisible_disability.html has information on a series of conditions not immediately visible, but potentially crippling socially and professionally.

Irritable Bowel Syndrome (IBS)

Help for Irritable Bowel Syndrome (IBS) at http://www.HelpForIBS.com/ "...Irritable Bowel Syndrome education, treatments and a support community for help managing all IBS symptoms .."

Leukemia

The University of Texas MD Anderson Cancer Center at http://mdanderson.org/diseases/adultleukemia is an excellent resource.

The Leukemia & Lymphoma Society (LLS) at http://www.leukemia.org "...is committed to providing information, support and guidance to people living with leukemia, Hodgkin or non-Hodgkin lymphoma, myeloma, myelodysplastic syndromes or myeloproliferative disorders. LLS also provides information to healthcare professionals involved in the care of patients with these diseases...."

Lupus:

The Lupus Foundation of America at http://www.lupus.org/newsite/index.html offers a wide range of information and resources.(new URL)

Lymphoma - Hodgkins Disease and Non-Hodgkins Lymphoma

Lymphoma Information Network at http://www.lymphomainfo.net is for those seeking information on lymphoma - Hodgkin's Disease and Non-Hodgkin's Lymphoma. "This site strives to do three things: put a bit of humanity and understanding to this disease, to gather lymphoma information and resources in one place, and to present information in an easy to understand and logical format..."

new GIF The Lymphoma Research Foundation at http://www.lymphoma.org "...is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF's mission is to eradicate lymphoma and serve those touched by this disease..."

Mesothelioma and asbestos-related cancers

Neurofibromatosis:

http://www.nf.orgis the home of the National Neurofibromatosis Foundation, Inc., offering publications, research news and general information.

Obsessive Compulsive disorder

Designed Thinking has a good OCD page

The Obsessive Compulsive Foundation is excellent.

The OCD Resource Center is also very useful.

Osteogenesis Imperfecta:

The Osteogenesis Imperfecta Foundation at http://www.oif.org is the only voluntary national health organization dedicated solely to helping people cope with the problems associated with OI.

Ostomy/Ileostomy

Shaz's Ileostomy page at http://www.ostomates.org/ NEW URLis also a personal page - and be patient because it's slow-loading - but it is very good.

United Ostomy Association at http://www.uoa.org/is full of information.

Pompe's Disease

The Pompe's Diseases Page at http://www.pompe.org.uk offers resources for patients or parents of children with this rare metabolic disorder.

International Pompe Association at http://www.worldpompe.org "The IPA is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activites and share experience and knowledge between different groups..."

Porphyria:

A great starting point is Yahoo's Porphyria page which has number of sites.

The University of Queensland in Australia has an excellent Patient's Guide to Porphyria page at http://www.uq.edu.au/porphyria.

Selective Mutism

Selective-Mutism.com at http://selective-mutism.com is the companion site site for "The Silence Within", an excellent teacher parent guide book on this condition.

Selective Mutism Foundation, Inc. at http://www.selectivemutismfoundation.org is home for this condition. "Selective Mutism (SM) is a psychiatric disorder seen more often in children - characterized by persistent FAILURE (not refusal) to speak in select social settings."

Treating Selective Mutism in Children at http:www.social-anxiet.com/selective_mutism.html Deals with the silence of a child that goes beyond shyness and is not a 'speach disorder'

Sickle Cell:

Sickle Cell Disease Association of America, Inc. at http://www.sicklecelldisease.org is a resource-rich site

Sleep Disorders

About Sleep Disorders Blogspot at http://www.aboutsleepdisorders.blogspot.com provides info on all sorts of sleep disorders

Sleep Disorders Guide at http://www.sleepdisorders.com "...A comprehensive information guide about sleep disorders. Descriptions, symptoms, causes, treatments of various sleep disorders like sleep apnea, insomnia, snoring, restless legs and narcolepsy...."

Smith Magenis Syndrome:

Disorder Zome Archives Smith Magevis Syndrome page offers solid information on this condition

PRISMS: Parents and Researchers Interested in Smith Magenis Syndrome at http://www.prisms.org/home.htm"...is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. "

Spina Bifida:

Association for Spina Bifida and Hydrocephalus at http://www.asbah.org aims to improve services for people with spina bifida and/or hydrocephalus, to work with them to extend their choices, and maximise opportunities for independence and achievement.

SBH Queensland at http://www.spinabifida.org offers good resources on spina bifida and the related hydrocephalus

Spina Bifida Association of America at http://www.sbaa.org seeks "to promote the prevention of spina bifida and to enhance the lives of all affected."

Stroke:

American Stroke Association at http://www.strokeassociation.org visit to read more about stroke warning signs, chain of survival, and what you can do to get involved in the fight against stroke.provides good information.

National Stroke Organization at http://www.stroke.org provides a wealth of resources including support and caregiver information, and links to dozens of other resource web sites.

Stuttering:

International Stuttering Association at http://www.stutterisa.org offers resources and links

National Stuttering Association at http://www.nsastutter.org offers extensive resources.

The Power Stuttering Center at http://www.powerstuttering.com provides therapy and products that help

The Stuttering Home Page at http://www.msnu.edu//dept/comdis/kuster/stutter.html offers links to a range of resources including a link to a page with other stuttering pages

Stuttering Foundation of America at http://www.stutteringhelp.org provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.

Temporomandibular Joint (TMJ) disorder

TMJ Friends at http://www.tmjfriends.com "...is a non-profit website and support group for temporomandibular joint (TMJ) disorder patients and their care givers, family, and friends."

Tinnitus:

American Tinnitus Association at htt://www.ata.org promotes education and research and offers resources.

Australian Tinnitus Association, (NSW) Ltd at http://www.tinnitus.asn.au has as its mission "to provide information, support and counselling to tinnitus sufferers and preventative education to the wider community."

Tuberous Sclerosis:

The National Tuberous Sclerosis Association at http://www.ntsa.org/ "The National Tuberous Sclerosis Association (NTSA) is the only voluntary, national, non-profit organization, which provides support to victims of tuberous sclerosis and their families, awards grants to researchers and offers education to the public and professional communities."

Yahoo Canada's Tuberous Sclerosis page

Turner's Syndrome:

Turner's Syndrome Support Society (UK) is an English Turner's home page.

Turner's Syndrome Society of Canada offers resources for women and girls with Turner's.

Turner's Syndrome Society of the United States (new URL) offers help for Americans with Turner's.

Wilson's Disease

Wilson's Disease Association International at http://www.wilsonsdisease.org is a multilingual site with extensive resources on this "...genetic disorder that causes excessive copper accumulation in the liver or brain. It affects about one in thirty thousand people worldwide..."

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